E.g., 04/2018
E.g., 04/2018

Recent Comments

February 16, 2018 | Joanna Hitt, mother of patient
John flashes a smile during his lengthy stay at the Texas Children's NICU in 2005

Our story doesn't necessarily begin on the day our son, John Thomas Hitt, was born. You actually have to go a long way back before his birth, to the day I was born. You see, I was born with a congenital heart defect. This defect is called transposition of the great arteries, and it involves the two major vessels of the heart switching and connecting in the wrong place. After undergoing multiple surgeries as an infant to correct this defect, I went on to live a completely normal childhood.

But sometime in my twenties, I began to experience a few difficulties. When Tommy (John’s father) and I decided we were ready to start a family,...

February 15, 2018 | Jeremy S. Slone, MD, MPH

Currently, 8 out of 10 children diagnosed with cancer will live long, healthy and productive lives*. Unfortunately, we have to place an asterisk on that statistic, as it only applies to the 20 percent of children in the world who happen to live where proper cancer diagnosis and treatments are accessible. When I’m teaching medical students and residents, I often ask them a trick question on this matter. “What is the main risk factor that predicts a poor outcome in pediatric cancer?” These diligent trainees will invariably respond with different answers: diagnosis, location of the tumor, size of the tumor, stage of the cancer, age of the...

February 14, 2018 | Taylor Berry, patient

I joined the team of heart warriors at Texas Children’s Hospital at the age of 3, when I was hospitalized for the third time with pneumonia. To my parents’ surprise, my chest X-ray revealed an enlarged heart, a resting heart rate of 180/200 bpm and a diagnosis for restrictive cardiomyopathy, a condition that limits the heart muscle from relaxing, limiting the flow of blood.

I was immediately sent to Texas Children’s to receive the life gift of a heart transplant in May 2000. The first year following my heart transplant was rough as my body fought the new organ and experienced rejection. However, after the first year, the heart gave me...

February 12, 2018 | Dave F. Clarke, MD, MBBS, Rebecca J. Schultz, PhD, RN, CPNP and Jillian Davis, RD, LD

What is epilepsy, and who is affected?

Our brains operate incredibly, almost like a circuit board. In the brain, billions of nerve cells arranged in intricate patterns interact with each other through electrical circuits, resulting in all of our cognitive function. If a disruption hits any of these electrical circuits, a seizure could occur, presenting an uncontrollable disturbance in behavior, sensation or movement with (or without) altered states of alertness and comprehension. Epilepsy is a common neurological disorder that can affect anyone, and stems from a variety of causes, including genetic makeup, structural...

February 09, 2018 | Richard Engel, father of patient

It can be lonely having a child , a condition my family is still coming to terms with. It can be lonely when you walk down the street and see parents with their "normal" boys and girls skipping or scootering to school and knowing that your child's life, and yours, will never be like theirs.

It can be lonely when you go to play groups and catch a glimpse of another parent noticing that something isn't quite right about your child, that he isn't walking or talking or sitting up straight, but not...

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