E.g., 02/2018
E.g., 02/2018

Recent Comments

February 09, 2018 | Richard Engel, father of patient

It can be lonely having a child , a condition my family is still coming to terms with. It can be lonely when you walk down the street and see parents with their "normal" boys and girls skipping or scootering to school and knowing that your child's life, and yours, will never be like theirs.

It can be lonely when you go to play groups and catch a glimpse of another parent noticing that something isn't quite right about your child, that he isn't walking or talking or sitting up straight, but not...

February 08, 2018 | Samira Armin, MD, FAAP

“Doctor, he had a temperature of 104F overnight.”

“No matter what we did, her fever would not come down. She was burning up.”

“I’ve never seen my child so sick and we didn’t know what to do.”

One of life’s biggest challenges is knowing what to do when your child is sick. Concerned parents often ask their pediatrician, “At what temperature do I take my child to the emergency room?” The answer is: there really is no number. A higher fever doesn’t necessarily mean a sicker child. Sometimes, a lower body temperature can affect a child more than a high one. Remember, a fever is the body’s natural...

February 07, 2018 | Matt and Denise Stanton, parents of patient

July 4 is a day filled with anticipation and happiness for children throughout our country. This day for 6-year-old Madeleine Jane Stanton (Maddie), and our family, almost four years ago, was anything but exciting or happy.

It was on this day we found out our bright, beautiful and seemingly healthy daughter had leukemia. The symptoms leading to the diagnosis were opaque and confusing, ensnaring family practitioners, emergency room doctors, family and friends in traps of misdiagnoses. Symptoms began with periods of intense back pain, which was first mistakenly attributed to physical strain from gymnastics and a few days later changed...

February 06, 2018 | Jenny Rodgers, mother of patient

You can find Jenny's first two blog posts on Aiden below:

About four years ago, our son Aiden was prenatally diagnosed with hypoplastic left heart syndrome (HLHS). We were told he would be born with half of a functioning heart. I was 20 weeks pregnant, very scared for the future of our baby boy and had 19 weeks until I...

February 05, 2018 | Heather Lukolyo, MD, MPH

No family in the world should have to navigate their child’s cancer journey alone.

Yesterday marked World Cancer Day, a global event set to unite the world’s population in the fight against cancer. It aims to save millions of preventable deaths each year by raising awareness and education about cancer, pressing governments and individuals across the world to take action. Currently, 8.8 million people die from cancer worldwide every year, out of which, 4 million people die prematurely.

“People in villages do not know about cancer. We need to tell them it can be treated,” one parent of a cancer patient...